A few days ago Aaron noticed his shadow. While changing him on our changing table, Aaron looks over to the right against the wall and moves his left hand back and forth, all sorts of different ways. He just watches his shadow and the movements he creates. It is so cute to watch, he is so interested in it and reaches for the wall and touches his shadow. It reminds me of Peter Pan when he lost his shadow. I try to do shadow puppets for him but they do not turn out to look like much of anything but a rabbit and a dog. :)
Aaron and Conor are such joys to watch. I am so amazed at what they do and how intrigued they are at something that we do not pay any attention to, such as.. our shadow and ceiling fans. I'm beginning to think life's secrets are floating around by those ceiling fans and we have forgotten them! :) Conor is now standing and trying to stand on his own without support. He loves to stand up and peak his head over the crib railing or the play yard we have.
This week is full of normal therapy schedules and one doctor appt. We will find out results from the EEG, finally. I'm happy to know soon, but I worry that it will not be what I am expecting and that we will not have a plan in place. We had a sermon quite awhile ago and giving your worries to God, I have been reminded of that while waiting for result after result, however, at times it is difficult to forget them.
Harper, the little charmer from KC, will be having more testing done out of state this week. Please keep him in your prayers as well as his family.
Today, Feb. 28th is National Rare Disease Day. Please spread the word about rare diseases such as Ohtahara Syndrome and Infantile Spasms to those around you and lets help these children be recognized not only today, but everyday.