Trigeminal Neuralgia

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Updated: 25-Aug-10
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About Neuropathic Facial Pain and TN (Trigeminal Neuralgia)

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The trigeminal nerve innervates a portion of the scalp, the face, nose, inside the nose, lips, inside the mouth, part of the tongue, and every tooth in the mouth. 

Often it proves difficult for the healthcare provider and patient to determine the fine differences between classic trigeminal neuralgia and trauma induced trigeminal neuropathic pain.

In order to decide on the proper treatment plan it is imperative to recognize these differences.  A destructive procedure used for classic TN could make neuropathic pain much worse.

   
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TN (Trigeminal Neuralgia) Description - Definition and historical information

     
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Neuropathic Facial Pain Description - Classification System; Cause and Symptoms; Diagnosis; Treatment; Complementary and Alternative Medicine; Integrative Medicine

     
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Dental Issues - Tips for staying as painless as possible during dental treatment

     
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Treatment Options - Medical/Medications; Surgery; Complementary and Alternative Medicine

     
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TNA Face Pain Tip Sheet - See what's worked for other patients; all information is anecdotal

     
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Diagnostic Questionnaire - An online questionnaire to help you get a correct diagnosis of your facial pain.  Please note that this link will take you off the TNA website.

     
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*Articles and Papers - sorted by topics: diagnosis; medical treatment; surgical treatment (MVD, destructive procedures, neurostimulation); complementary and alternative; scientific articles; other related conditions; for patients

     
 

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TN (Trigeminal Neuralgia) Description / Definition

TN (Trigeminal Neuralgia) is a nerve disorder of unknown origin that causes sudden shock-like facial pains, typically near the nose, lips, eyes or ears.  It is said to be the most excruciatingly painful human condition in the world.  

The disorder, also called tic douloureaux, is named for the three-part (trigeminal) nerve that supplies sensations to all parts of the face.

However, because the trigeminal nerve is involved does not establish the diagnosis as being TN. 

The earliest description of trigeminal neuralgia can be inferred by Galen who was born in AD 81. 

TN (Trigeminal Neuralgia) is a disorder of the fifth cranial (trigeminal) nerve that causes episodes of intense, stabbing, electric shock-like pain in the areas of the face where the branches of the nerve are distributed - lips, eyes, nose, scalp, forehead, upper jaw, and lower jaw. 

A less common form of the disorder called "Atypical Trigeminal Neuralgia" may cause less intense, constant, dull burning or aching pain, sometimes with occasional electric shock-like stabs.

Both forms of the disorder most often affect one side of the face, but some patients experience pain at different times on both sides. 

Onset of symptoms occurs most often after age 50, but cases are known in children and even infants. Something as simple and routine as brushing the teeth, putting on makeup or even a slight breeze can trigger an attack, resulting in sheer agony for the individual.

Trigeminal neuralgia (TN) is not fatal, but it is universally considered to be the most painful affliction known to medical practice.  By many, it's called the "suicide disease." 

Initial treatment of TN is usually by means of anti-convulsant drugs, such as Tegretol or  Neurontin.  Some anti-depressant drugs also have significant pain relieving effects. 

Should medication be ineffective or if it produces undesirable side effects, neurosurgical procedures are available to relieve pressure on the nerve or to reduce nerve sensitivity. 

Some patients report having reduced or relieved pain by means of alternative medical therapies such as acupuncture, chiropractic adjustment, self-hypnosis or meditation.

Trigeminal Neuralgia is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that TN, or a subtype of TN, affects less than 200,000 people in the US population.

It is estimated that 1 in 15,000 people suffer from TN, although those numbers may be significantly higher due to frequent misdiagnosis.  1 in 5,000 are thought to suffer from some type of facial pain.

The exact cause of TN is not fully understood.

TNA's website is the number one resource on related facial pain conditions, including trigeminal neuralgia, for patients, their families, doctors and other medical professionals, policymakers, and the public.
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