Barber ALS Research Award

"Never Give Up, Always Give Back"

About Jim Barber
Jim Barber was a Vietnam War veteran and a graduate of University of California, Santa Barbara, and the UC Hastings College of Law. He was a successful attorney for more than 30 years, before he was diagnosed with ALS in 2006.

During his nearly decade-long battle with this disease, Jim became an instrumental voice in the ALS community. He helped create the California ALS Advocacy Committee, whose work resulted in the passage of two bills - The ALS Standard of Care Bill, which stated the highest standard of care for people with ALS in the California Health Code, and the California Tax Check-off Bill, which to date has raised more than $600,000 for ALS research.  In addition, along with other advocates, Jim helped with securing a pivotal $18 million grant for ALS research from the California Institute for Regenerative Medicine (CIRM). The ALS Association and the Golden West Chapter recognized Jim for his work by honoring him with the Iron Horse Award in 2010 and the Heroes Living with ALS Award in 2011 and again in 2016.

A major outcome of Jim's work was the formation of the California ALS Research Network in 2010 and the creation of the annual California ALS Research Summit in 2011.

About the Barber ALS Research Award
Jim Barber held a deep passion and commitment to The ALS Association’s vision - to create a world without ALS. It was his desire that the annual ALS Research Summit would encourage collaboration and sharing of ideas as well as give special recognition to those participating researchers. Beginning with the 2017 Summit and continuing annually, the Barber family and Golden West Chapter will present three (3) cash awards of $1,000 to each of the top poster presenters, along with a special memento recognizing their accomplishment.

Poster Submission Information and Deadlines:

  • Please indicate your intention to submit on your summit registration by Friday, January 6, 2017
  • Send a mockup of your poster to by Tuesday, January 10, 2017
  • The poster should be no larger than 3’ by 4 ‘.Accepted posters need to be setup on Saturday, January 14 between 9:30-11:15 am. Please see Connie Bailey at Registration Desk that day for location information.
  •  The rapid fire poster presentations will take place from 11:45 am-12 pm (noon) in Aresty Auditorium.  There will be time for additional discussion from 12:00- 1:30 pm during the lunch hour.
  •  Poster must be taken down by 3 pm (Note: Keynote speaker will start at 3 pm)
  • Poster awards will be presented at 3:45 pm in the Aresty Auditorium.
  •  In addition, winners will be formally acknowledged during our Ask the Experts later that day and are invited to present their posters at the Golden West Chapter’s board meeting in Los Angeles on Sunday, January 29, 2017.

For more information or questions about poster abstracts, please contact Constance Bailey, Executive Assistant to Clive Svendsen, at (310) 248-8560 or