NYC Metro NOAH’s One-Day Mini Conference


REGISTRATION IS CLOSED ~ noahnycmetro@gmail.com 
La Quinta Inn & Suites
Secaucus Meadowlands
350 Lighting Way
Secaucus, NJ 07094
Saturday, May 4, 2013

Be a part of the NOAH Magic!
The power of the albinism community is when we learn, interact and network together! Now the power of NOAH is available right in your backyard! 
Join the NYC Metro Chapter for a one-day mini-conference! Affordable registration fees* include educational sessions, discussion groups, children’s activities, lunch and dinner. 

Registration Fees
$75 adults (13 and older)
$60 kids (12 and younger)
*Prices are for current NOAH members. 
Call for non-member pricing or visit http://store.albinism.org to become a NOAH member today!
Registrations must be received by April 24, 2013.

Nationally Renowned Presenters!
  • Murray Brilliant, Ph.D. - His efforts have led to the identification of three genes for albinism: Hermansky-Pudlak Syndrome 1 and Oculocutaneous Albinism types 2 and 4. Dr. Brilliant has two current research projects on albinism: one focused on retinal changes in people with albinism and one aimed at improving vision in people with albinism.
  • David Adams, MD, Ph.D. (via phone) - His work focuses on albinism genetics and the use of cell biological techniques to study human pigmentation and develop new therapies for OCA.
  • C. Gail Summers MD (via phone) – Her interests include surgical pediatric ophthalmology and strabismus, with special interest in genetic eye diseases and research relative to the prevention and management of retinopathy of prematurity and visual function in albinism.
  • Peter Ash from Under the Same Sun.
  • Donna Appell, RN from the Hermansky-Pudlak Syndrome Network (HPS).
  • Matt Bailey will discuss How We See.
  • Barbara Fischlowitz-Leong will discuss Assistive Technology.
  • Rick Guidotti will present his work with Positive Exposure.
Fun for the Kids! 
We have engaging activities planned for the little ones while the grownups attend sessions. Preschool kids will be amazed and entertained by Mad Science and Party Time New Jersey while school aged kids will visit the Liberty Science Center.

Volunteer! 
Are you a fun, enthusiastic, responsible person who enjoys working with kids?
We need a limited number of volunteers to help supervise children during the mini conference. If you’d like to be considered, email info@albinism.org or call 800-473-2310 for more details.

Location, Lodging and Transportation
La Quinta Inn & Suites
Secaucus Meadowlands
350 Lighting Way
Secaucus, NJ 07094
Phone: 201-863-8700
Mention you are with NOAH to get the group rate
$144 per night (single and double)
$154 per night (triple and quad)
Self-parking is available at no charge
The Secaucus Junction Station which can be reached from Penn Station or Hoboken Terminal is close to the hotel. Contact the hotel to schedule free shuttle service to/from the station.


REGISTER BY APRIL 20, 2013
  1. Complete the online form.
  2. Once processed, we will email an invoice. 
  3. Pay online through Pay Pal or mail a check or money order within seven days after you receive the invoice or by April 20, 2013 – whichever comes first. 
  4. NOAH will mail your receipt. 

Refund Policy
If you are unable to attend, please note the deadline for receipt of your written refund request. All refunds are subject to a $20 cancellation fee.
Date                 Refund Available
Before March 31 All fees refunded
Before April 10 50% of fees refunded
April 20 or later No refunds

Special Thanks!
Did you know that your registration fee does not cover the cost of the mini conference? NOAH would like to thank the NYC Metro chapter for the subsidy that makes this event possible!