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Too little, too late?

Ousted SJ & PR- DOH

 

 

2-6-06

Dear Legislators, Sirs and Madams:

We are since 1999, to our knowledge, the only PLWHA founded,

and voluntarily operated Non-Profit

Community Based Organization in Puerto Rico. PSPS provides thousands of PLWHA and their families with tools so they

understand their civil rights, promoting advocacy, empowerment and providing service referrals, among other services.

Accountability wise we have maintained a vigilant eye on State and Municipal funding to AIDS Service Providers here in Puerto Rico, for the past six (6), (going on seven (7) years ),after the scandalous San Juan AIDS Institute convictions, in which $2.4 million dollars destined to AIDS patients were embezzled.

For the past five (7) years we have documented and witnessed, along with other fellow HIV/AIDS members of the RWCA Title 1 Planning Council, how the San Juan AIDS Task Force, through questionable actions, ineffective distribution of funds, and untimely dissemination of vital and pertinent information, (in regards to changes in expectations, treatments and Quality Assurance), has demonstrated, (through its actions), a high degree of insensibility. This is non-compliance of

federal laws.

We have worked together with other NGOs during all these years, to advice and even delineated correction plans for more effective distribution of funds, yet these NGOs still find themselves having to

wait for months, time again and again, often having to let go Title I contracted employees due to non payment related to factors caused

by an ineffective administration of funds. It seems that the municipality lacks the in house expertise to carry out important and time sensitive tasks in order to provide the highest quality of services and treatment

to guarantee adherence to life saving medications, in order not to

create resistance to them. Sadly too, we must point out that this same situation happens with funds administered by the Department of

Health of Puerto Rico; specifically Title II funding.

All this serves as evidence that the current millions of life saving dollars destined for this segment of our population are not adequately being administrated, (the AIDS Task Force has had numerous vacancies in

its administrative body and no inmediate actions have been taken. Furthermore the Department of Health as also had corrective

measures , which to our knowledge are still pending.) as stated by:

THE RYAN WHITE CARE ACT:A COMPILATION OF THE RYAN WHITE CARE ACT OF 1990 [Pub. L.

101-381], AS AMENDED BY THE RYAN WHITE CARE ACT AMENDMENTS OF 1996 [Pub. L. 104-146]

AND THE RYAN WHITE CARE ACT AMENDMENTS OF 2000 [Pub. L. 106-345]

Public Law 101—381. Section 2 of that Public Law provides as follows: “It is the purpose of this Act to provide emergency assistance to localities that are disproportionately affected by the Human Immunodeficiency Virus epidemic and to make financial assistance available to States and other public or private nonprofit entities to

provide for the development, organization, coordination and operation of more effective and cost efficient systems for the delivery of essential services to individuals and families with HIV disease.”

We therefore, in accordance with various of the Metropolitan AIDS Service Providers, respectfully request that another CEO (Grantee)

for Title I funds, now administered by the Emergency Municipality

Area CEO, Mayor, Jorge Santini Padilla, be chosen amongts multiple possible candidates that have the administrative capabilities of

handling such an important life saving endeavor.

Right now the funds for the EMA of San Juan have been restricted by HRSA, after the sudden and unexplainable disolution of San Juan's Planning Council, last November 17, 2005.

The EMA has been without a Council for three months now and

matters as important as the Comprehensive Plan as well as the re-programming of last year's carry over are in the air.

As a result of this perilous situation medicines are been rationed to some patients, putting their adherence to antiretroviral cocktails in jeopardy. Local news last night indicated that the Municipality has a debt of $10 million dollars to its sole medicine provider: Borschow Medicals.

This is extremely frightening and, in our point of view, deserves an in depth investigation.

It seems appropriate to point out what, in our opinion as HIV/AIDS patients, triggered the dismantling of the San Juan Title I Planning Council: the Mayor named one of his employees to serve as Co-Chair of the Council, several weeks before he disolved it. We had to quote sections of the RWCA and the Council's Rules and Regulations to impede this position to be held by an employee of the CEO, as expressed by law, (an employee can be a Co-Chair only if the EMA's Council's regulations prohibits it, which is the case in San Juan).

We are trully worried that the CEO may be trying to create a Council that will work as a rubber stamp of the Municipality's administration,

and in this case, the Mayor.

For all these reasons we reiterate that a new CEO (Grantee) for the EMA of San Juan should be identified and named ASAP.

Thank you very much.

Mister José F. Colón and Mister Anselmo Fonseca

jfcl211@aol.com                anselmofonseca@aol.com

HIV/AIDS Patients / Activists