Dealing with Cancer

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Documentary: the  impact of cancer on patient sibblings

Sibblings and Cancer Part Two

 
 
  

Dealing with Chronic Illness: Your Emotions and Stress



Therapist Andrea Maloney-Schara, LCSWA, who practices in the Washington, DC area, researches and practices according to Family Systems Theory, which was developed by psychiatrist Murray Bowen as an outgrowth of his research at the National Institutes of Health.

According to Andrea, some key factors on how people with chronic illness, and their family members, can more effectively manage stress and emotions as part of an overall effort for enhanced wellness are:

· The ability to be more open, valuing "neutral and constructive thinking and speaking," about what one can and can not do will often make a big difference in living with a chronic disease.

· Presuming that the family is told and given the true facts about the challenges that they will face and knowing what you are up against create a family plan about who is willing to take responsibility for what.

· It's more thoughtful and calm when people write things to one another first rather than trying to talk out in the open when people are all ready raw with emotions.

· Say to yourself I will let myself worry about this problem for ten min., after those no more worry time for today

· Change your home by putting up visual remainders: pictures from vacation spots, friends, dreams, or any thing that sparks a visual positive mood around the house

· Creat a positive mood with music and flowers

· Find a spot to meditate

· If you want to pursue therapy, find someone that you are comfortable with. You should be the one in charge. Therapy should not be a mystery

More detailed information on Andrea Maloney Schara's innovative ideas about how people with chronic illness can more effectively manage stress is featured in an in-depth online interview 
 
 

Andrea Maloney Schara, LCSWA
Web site:
www.ideastoaction.com
Georgetown Family Center
4400 MacArthur Blvd. #103
Washington, D.C., 20007
Phone: 202-965-0730
 
 
 

Talking about cancer

If you have been told that you have cancer then you may find it very difficult to talk about what’s happening to you and how you feel. Most people with cancer find it awkward and embarrassing (or uncomfortable and even painful) to talk about their illness with their family and friends – as well as with the nurses, doctors and other professionals looking after them. If that’s what you are feeling, then this section has been written to help you.

This section offers some simple advice that will make you feel more comfortable about asking what you want and need to know. It will help you to talk about what you are feeling, if you want to.

It can also help you to understand why your friends, family and even your doctors and nurses may find talking awkward. It gives tips on how you can help them – even though you may feel that they should be helping you!

This section aims to help you:

  • understand the most common reactions to being told you have cancer
  • understand what your friends and family may be feeling
  • find a sensible and practical approach that will help you to talk about your cancer more freely and easily.

In this way you can get the emotional support that you need.

It is very important to realise that there is no single ‘correct’ way to cope with cancer. This section can give you some general guidelines that you may find helpful. But how you talk to people about your cancer will depend very much on your own personality and how you usually talk to the people around you. Don’t be worried if the examples or illustrations used do not fit in with your own style - you can adapt them to suit yourself.

                                              
Emotional and psychological supportive services are absolutely necessary for a comprehensive wellness plan to achieve it's primary goal of helping you recover and live a long happy life well with/or after cancer treatment .
 
Don't be embarrassed or shy.  If you need "privacy" to express what you feel and how you feel, remember that most supportive services are confidential and that many websites offer online communities where you can vent privately.
 
When you are ready seek out a place you feel good about, go  share some time with others who are walking the walk with you and let  new friendships help you make sense of it all and support your journey.
 

 
 

 
 
 

Coping With Cancer Through Humor

A cancer diagnosis is serious, so perhaps it's surprising to learn that oncologists say they often use humor with people, sometimes to help put a person at ease during a tense or uncomfortable time. Laughter has many other positive effects on the mind and body, too.



 

Allowing yourself to laugh


Giving yourself permission to laugh is as important as giving yourself permission to cry and grieve. That's because humor is an important defense mechanism; it can help people with cancer to productively adjust to the stress of their illness and treatment.

Being able to laugh can create a sense of power. By helping you adjust to the reality of your illness, it can give you a renewed sense of control over your life.

 

 


Helping the healing process


While the medical effects of humor have been difficult for researchers to determine, a number of scientific studies have found evidence to support a variety of laughter's physical benefits.

A recent study, for example, found that laughter helps blood vessels function better. Another study shows that laughter causes your brain to release chemicals that relax your muscles and produce pleasure. Still, another study credits laughter with stimulating the body's immune system, which can help fight viruses. And hearty laughter has even been shown to massage your internal organs.

Perhaps more important than any specific medical benefit, though, are laughter's psychologic benefits, which are plentiful and powerful.
 

 
 

Coping with reality


Laughter helps people with cancer cope with their serious illness in part by letting them acknowledge their condition in a less threatening way. It can offer emotional relief.

Sometimes, people with cancer find comfort in joking about death. One researcher found that humorous "death talk" helped people with cancer to think about death without feeling threatened by it.

Some people with cancer find humor in the disease itself. Use Google to search the Internet for "cancer jokes," and you'll find hundreds of links, from "My favorite cancer jokes" to "Good old fashioned cancer jokes."
 

 

Creating a sense of hope


 

It's hard not to feel happy when you're laughing, which explains why laughter and hope go hand in hand. Laughter can provide a sense of perspective on our problems and a release for pent-up emotions.

Indeed, in one study of terminally ill adults, 64% of participants said that humor helped them deal with an otherwise overwhelming situation. And 85% said that humor gave them hope. In another investigation, a group of people with cancer said that their oncologists' use of humor gave them hope.

Some doctors think that hope may even help your body deal with cancer. Scientists are looking at the question of whether a hopeful outlook and positive attitude help people actually feel better.
 

 

Connecting with friends and family


For people with cancer, making connections with other people sometimes becomes difficult; close friends and even family members may not know what to say, or how to act. They may be so worried about saying the wrong thing that they don't say anything at all.

Humor can alleviate that tension, in some cases, allowing friends and loved ones to be more encouraging and supportive. You certainly won't always feel like laughing, of course, but when you set the tone by saying something funny, you give those around you permission to laugh—and relax—too. What's more, laughter has the power to create an emotional bond between two people, which in turn can strengthen relationships and pave the way for more serious discussions at another time.
 

 

Connecting with doctors


Just as humor can set the tone for interactions with friends and family members, it can also help establish good communications between people with cancer and their doctors. Being able to share a laugh with your doctor can create a sense of familiarity and trust, which is important for the close relationship that doctors have with their patients. The same can be said for nurses and medical staff, who play a key role in managing a person's care.


After Thyroidectomy: Consider Hypothyroidism

Low Sex Drive and Thyroid Disease

According to a Journal of the American Medical Association (JAMA) study reported on in February 1999, about 43 percent of women and 31 percent of men suffer sexual inadequacy for one reason or another.The reasons cited included low desire, performance anxiety, premature ejaculation and/or pain during intercourse. Interestingly, this is thought to actually underestimate the real level of sexual dysfunction in the U.S.

Research indicated that many of the sexual concerns were likely treatable, as they are due to physical and health issues. These health concerns can include common hormonal imbalances such as hypothyroidism.

Many people -- women in particular -- still complain of a lack of sexual desire even after their doctors consider the thyroid problem sufficiently treated.    Low libido is just one of many symptoms that are not resolved for many people, despite treatment, specially after thyroidectomy.

 Here are ten ways to revive your sex drive.

1. Make sure your thyroid drug treatment is optimal.

2. Make sure your TSH level is the best for your health

3. Check your hormones - get a full profile

4. Have a thorough physical to rule out other non-thyroid health conditions

5. Get testosterone supplementation, if necessary

6. For women, supplement estrogen/progesterone if needed

7. With your doctor's approval, consider supplements

8. Lose weight if you can. Some people have metabolic disorders that make it difficult, sometimes,  impossible  to lose weight, so please have a full medical evaluation to and be realistic.

9. Exercise, even moderate excersice can help you feel better overall.  Start slow and build up duration and frequency.  You can start by walking  20 minutes a day every other day.  

10. Consider  counseling or psychotherapy, either alone or with your partner 


  

Young adults and Cancer Psychosocial Needs

CancerInstNJ Young Adults Unmet Needs

Cancer Institute of NJ Conference

 

  

 

   

 
 

 

 

 

 

 

 

Dealing with people dealing with cancer

A diagnosis of cancer can bring many types of challenges to a person. Often, the physical effects of the disease and treatment are focused on the most in the effort to cure the cancer. However, it is also important for the health-care team to address psychosocial effects, which are the emotional and social issues that people with cancer often encounter and can greatly affect patients' well-being. According to a 2007 Institute of Medicine (IOM) report on this topic, psychosocial problems can include:

  • Lack of information and support

  • Emotional difficulties, including depression and anxiety

  • Lack of transportation

  • Disruptions to work, school, and family life

  • Insufficient financial resources

The IOM report notes that such psychosocial obstacles can interfere with a person's healthcare and diminish his or her health and functioning. However, the impact of emotional and social issues can be significantly reduced through effective communication between the patient and the doctor. Patients and caregivers can take an active role in addressing these challenges by asking questions and talking with the doctor about both physical symptoms and psychosocial concerns, such as coping with the diagnosis, paying for medical bills, or getting to appointments. There are many support services available for people with cancer, and being linked up with the appropriate services can provide an enormous benefit to the patient's overall care.


 

Patient information and support

 

Access to current information about a specific cancer type or the related treatment options help patients make more informed decisions about their health care. Patients also should know the short and long term side effects of their treatment in order to anticipate how their needs may change in the future. This website has a number of additional patient information resources listed on  the Useful Links and Resources Page and in many subpages.  


 

Emotional support

 

Many people facing a cancer diagnosis and the physical effects of treatment experience emotional difficulties, including anxiety and depression. And, patients with untreated depression or anxiety may be less likely to take their cancer medication and maintain their health and are more likely to withdraw from family or other social support. There are services available to help patients maintain their emotional well-being and get help for depression or anxiety, such as peer support groups, individual or group counseling, and medication. Depression and Sadness section provides more information on how depression and anxiety can be treated.


 

Finding Help for Transportation

Getting to appointments and picking up prescriptions can be difficult for people who don't have access to transportation. Even people who do have transportation may find that providing it on their own is difficult if they are feeling ill. Community resources may be available to help; some hospitals or local agencies have low-cost or volunteer transportation programs, and some non-profit cancer organizations provide funds for taxi costs.
 

Many people have trouble traveling to and from treatment because the chemotherapy or radiation makes them too weak. Transportation services are available in many communities and, although they vary, are usually one of these three types:

  • Low-cost van services run by community agencies or hospitals
  • Volunteer transportation services (where someone will drive you in their car) run by community agencies or local religious groups
  • Private transportation services (car services and taxis) whose costs may be covered by some nonprofit groups

Here are some tips to find help with transportation:

  1. Start with family and friends – often they want to help out and this is something concrete they can do.
  2. Check with your hospital and see if they have a van service for people coming as an outpatient (not admitted to the hospital) for radiation and chemotherapy. Or you may be able to carpool with other outpatients.
  3. Contact your local or county government office to see if they provide low-cost transportation on the public transit system for elderly or disabled individuals (sometimes called "paratransit").
  4. Check with community agencies, like the YMCA, the YWCA, Catholic Charities, Area Agencies on Aging, or local churches, synagogues and fraternal orders.
  5. Paying for private transportation (taxis, ambulettes, and car services) may be your only option. This can be expensive, so don't hesitate to shop around, and ask them if they will offer a discounted rate if you use them regularly.
  6. If you are looking for out-of-town transportation, there are organizations that can match you with low-cost or free flights. Two places to start are the Air Care Alliance and the National Patient Travel Center.
  7. CancerCare provides limited financial assistance for transportation to treatment under some circumstances. Contact  then via email or call 1-800-813-HOPE (4673).

Financial assistance and advice

 

Lack of adequate health insurance can prevent many patients from seeking treatment, taking necessary medications, or attending regular appointments. People with a limited income can also have difficulty affording basic necessities in addition to medical care. Even patients with health insurance may find that the costs associated with cancer treatment are more than expected. Financial assistance and advice about paying for health care, medications, and other necessities during cancer treatment may be available through different organizations or government services. The Financial Resources section provides information on understanding health insurance, and lists national, local, and governmental sources of financial assistance.


 

Lifestyle changes

 

For some people, part of their cancer treatment plan includes significant changes in lifestyle and habits, physical activity levels, or diet to help relieve side effects or reduce chances of cancer recurrence (the cancer returning after treatment). For people who smoke, quitting smoking is often an essential part of recovery. These changes are can be difficult to make, and it is important that patients receive the support and resources they need.


 

Managing life disruptions

 

Many patients may have a significant change in work schedules, and some people must stop work entirely during cancer treatment. The Americans with Disabilities Act and the Family and Medical Leave Act provide legal protection for disruptions in work due to cancer treatment. For more information, read Cancer.Net's section on Cancer and the Workplace. School can also be disrupted; information on managing school re-entry can be found at Cancer and School. And, patients may also find that they have trouble performing daily activities. Home care services are often available for people who need greater assistance in the home, either with their medical needs or activities of daily life.


 

Institute of Medicine Report

 

As mentioned above, in 2007, the IOM issued the report, Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs. This report provides 10 recommendations that can help doctors identify emotional and social needs, refer patients to necessary services, support patients in managing their illness, coordinate psychosocial and medical care, and follow-up on the effectiveness of these interventions.

For more information on how the IOM recommendations affect patients, read the

Read the executive summary of the IOM Report: Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs.

Order a copy of the full report from IOM and access a resource list and report brief for patients or health-care providers.



Last Updated: October 18, 2008

Additional resources


Journal of Clinical Oncology (JCO):
Humor and Oncology (January 20, 2005)

American Psychology Association: Humor, laughter, and physical health: Methodological issues and research findings (Psychological Bulletin, July 2001)

National Cancer Institute: Taking Time (Patient and family education booklet, Revised September 2003)

Psychology Today (April 29, 2003): The Benefits of Laughter

University of Maryland Medical Center: Laughter is the 'Best Medicine' for Your Heart

University of Michigan Comprehensive Cancer Center:
 
 
 
 

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