Documentary: the impact of cancer on patient sibblings
Dealing with Chronic Illness: Your Emotions and StressTherapist Andrea Maloney-Schara, LCSWA, who practices in the Washington, DC area, researches and practices according to Family Systems Theory, which was developed by psychiatrist Murray Bowen as an outgrowth of his research at the National Institutes of Health. According to Andrea, some key factors on how people with chronic illness, and their family members, can more effectively manage stress and emotions as part of an overall effort for enhanced wellness are: · The ability to be more open, valuing "neutral and constructive thinking and speaking," about what one can and can not do will often make a big difference in living with a chronic disease. · Presuming that the family is told and given the true facts about the challenges that they will face and knowing what you are up against create a family plan about who is willing to take responsibility for what. · It's more thoughtful and calm when people write things to one another first rather than trying to talk out in the open when people are all ready raw with emotions. · Say to yourself I will let myself worry about this problem for ten min., after those no more worry time for today · Change your home by putting up visual remainders: pictures from vacation spots, friends, dreams, or any thing that sparks a visual positive mood around the house · Creat a positive mood with music and flowers · Find a spot to meditate · If you want to pursue therapy, find someone that you are comfortable with. You should be the one in charge. Therapy should not be a mystery More detailed information on Andrea Maloney Schara's innovative ideas about how people with chronic illness can more effectively manage stress is featured in an in-depth online interview Andrea Maloney Schara, LCSWA Web site: www.ideastoaction.com Georgetown Family Center 4400 MacArthur Blvd. #103 Washington, D.C., 20007 Phone: 202-965-0730 Talking about cancerIf you have been told that you have cancer then you may find it very difficult to talk about what’s happening to you and how you feel. Most people with cancer find it awkward and embarrassing (or uncomfortable and even painful) to talk about their illness with their family and friends – as well as with the nurses, doctors and other professionals looking after them. If that’s what you are feeling, then this section has been written to help you. This section offers some simple advice that will make you feel more comfortable about asking what you want and need to know. It will help you to talk about what you are feeling, if you want to. It can also help you to understand why your friends, family and even your doctors and nurses may find talking awkward. It gives tips on how you can help them – even though you may feel that they should be helping you! This section aims to help you:
In this way you can get the emotional support that you need. It Emotional and psychological supportive services are absolutely necessary for a comprehensive wellness plan to achieve it's primary goal of helping you recover and live a long happy life well with/or after cancer treatment .
Don't be embarrassed or shy. If you need "privacy" to express what you feel and how you feel, remember that most supportive services are confidential and that many websites offer online communities where you can vent privately.
When you are ready seek out a place you feel good about, go share some time with others who are walking the walk with you and let new friendships help you make sense of it all and support your journey.
Coping With Cancer Through Humor
A cancer diagnosis is serious, so perhaps it's surprising to learn that oncologists say they often use humor with people, sometimes to help put a person at ease during a tense or uncomfortable time. Laughter has many other positive effects on the mind and body, too.
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Dealing with people dealing with cancer |
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A diagnosis of cancer can bring many types of challenges to a person. Often, the physical effects of the disease and treatment are focused on the most in the effort to cure the cancer. However, it is also important for the health-care team to address psychosocial effects, which are the emotional and social issues that people with cancer often encounter and can greatly affect patients' well-being. According to a 2007 Institute of Medicine (IOM) report on this topic, psychosocial problems can include:
The IOM report notes that such psychosocial obstacles can interfere with a person's healthcare and diminish his or her health and functioning. However, the impact of emotional and social issues can be significantly reduced through effective communication between the patient and the doctor. Patients and caregivers can take an active role in addressing these challenges by asking questions and talking with the doctor about both physical symptoms and psychosocial concerns, such as coping with the diagnosis, paying for medical bills, or getting to appointments. There are many support services available for people with cancer, and being linked up with the appropriate services can provide an enormous benefit to the patient's overall care.
Patient information and support
Access to current information about a specific cancer type or the related treatment options help patients make more informed decisions about their health care. Patients also should know the short and long term side effects of their treatment in order to anticipate how their needs may change in the future. This website has a number of additional patient information resources listed on the Useful Links and Resources Page and in many subpages. Emotional support
Many people facing a cancer diagnosis and the physical effects of treatment experience emotional difficulties, including anxiety and depression. And, patients with untreated depression or anxiety may be less likely to take their cancer medication and maintain their health and are more likely to withdraw from family or other social support. There are services available to help patients maintain their emotional well-being and get help for depression or anxiety, such as peer support groups, individual or group counseling, and medication. Depression and Sadness section provides more information on how depression and anxiety can be treated. Finding Help for TransportationGetting to appointments and picking up prescriptions can be difficult for people who don't have access to transportation. Even people who do have transportation may find that providing it on their own is difficult if they are feeling ill. Community resources may be available to help; some hospitals or local agencies have low-cost or volunteer transportation programs, and some non-profit cancer organizations provide funds for taxi costs.
Many people have trouble traveling to and from treatment because the chemotherapy or radiation makes them too weak. Transportation services are available in many communities and, although they vary, are usually one of these three types:
Here are some tips to find help with transportation:
Financial assistance and advice
Lack of adequate health insurance can prevent many patients from seeking treatment, taking necessary medications, or attending regular appointments. People with a limited income can also have difficulty affording basic necessities in addition to medical care. Even patients with health insurance may find that the costs associated with cancer treatment are more than expected. Financial assistance and advice about paying for health care, medications, and other necessities during cancer treatment may be available through different organizations or government services. The Financial Resources section provides information on understanding health insurance, and lists national, local, and governmental sources of financial assistance. Lifestyle changes
For some people, part of their cancer treatment plan includes significant changes in lifestyle and habits, physical activity levels, or diet to help relieve side effects or reduce chances of cancer recurrence (the cancer returning after treatment). For people who smoke, quitting smoking is often an essential part of recovery. These changes are can be difficult to make, and it is important that patients receive the support and resources they need.
Managing life disruptions
Many patients may have a significant change in work schedules, and some people must stop work entirely during cancer treatment. The Americans with Disabilities Act and the Family and Medical Leave Act provide legal protection for disruptions in work due to cancer treatment. For more information, read Cancer.Net's section on Cancer and the Workplace. School can also be disrupted; information on managing school re-entry can be found at Cancer and School. And, patients may also find that they have trouble performing daily activities. Home care services are often available for people who need greater assistance in the home, either with their medical needs or activities of daily life. Institute of Medicine Report
As mentioned above, in 2007, the IOM issued the report, Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs. This report provides 10 recommendations that can help doctors identify emotional and social needs, refer patients to necessary services, support patients in managing their illness, coordinate psychosocial and medical care, and follow-up on the effectiveness of these interventions. For more information on how the IOM recommendations affect patients, read the Last Updated: October 18, 2008 Additional resources
Journal of Clinical Oncology (JCO): American Psychology Association: Humor, laughter, and physical health: Methodological issues and research findings (Psychological Bulletin, July 2001) National Cancer Institute: Taking Time (Patient and family education booklet, Revised September 2003) Psychology Today (April 29, 2003): The Benefits of Laughter University of Maryland Medical Center: Laughter is the 'Best Medicine' for Your Heart University of Michigan Comprehensive Cancer Center: Additional Information
National Cancer Institute: Support and Resources
American Cancer Society: Find Local Resources |
is very important to realise that there is no single ‘correct’ way to cope with cancer. This section can give you some general guidelines that you may find helpful. But how you talk to people about your cancer will depend very much on your own personality and how you usually talk to the people around you. Don’t be worried if the examples or illustrations used do not fit in with your own style - you can adapt them to suit yourself.




