ALS Association
The ALS Association, National Office
27001 Agoura Road, Suite 250 Calabasas Hills, CA 91301-5104 Phone: (818) 880-9007 Fax: (818) 880-9006 www.alsa.org/als/ The ALS Association's mission
is to lead the fight to cure and treat ALS through global, cutting-edge
research, and to empower people with Lou Gehrig’s Disease and their
families to live fuller lives by providing them with compassionate care
and support. American Association of People with Disabilities (AAPD)1629 K Street NW, Suite 503
Washington, DC 20006 202-457-0046 (V/TTY) 800-840-8844 (Toll Free V/TTY) 202-457-0473 (Fax) The American Association of
People with Disabilities (AAPD), the country's largest cross-disability
membership organization, organizes the disability community to be a
powerful voice for change – politically, economically, and socially.
AAPD was founded in 1995 to help unite the diverse community of people
with disabilities, including their family, friends and supporters, and
to be a national voice for change in implementing the goals of the
Americans with Disabilities Act (ADA). Association on Higher Education and Disability (AHEAD)107 Commerce Center Drive, Suite 204 Huntersville, NC 28078 (704) 948-7779 (Fax)
AHEAD is a professional membership organization for individuals involved in the development of policy and in the provision of quality services to meet the needs of persons with disabilities involved in all areas of higher education.
Autism Society of America (ASA)
Autism Society of America
7910 Woodmont Avenue, Suite 300 Bethesda, Maryland 20814-3067 Phone: 301.657.0881 or 1.800.3AUTISM (1.800.328.8476) ASA, the nation’s leading
grassroots autism organization, exists to improve the lives of all
affected by autism. We do this by increasing public awareness about the
day-to-day issues faced by people on the spectrum, advocating for
appropriate services for individuals across the lifespan, and providing
the latest information regarding treatment, education, research and
advocacy. Bazelon Center for Mental Health Law
1101 15th Street, NW
Suite 1212 Washington, DC 20005 Voice: 202-467-5730
TDD: 202-4674232 Fax: 202-223-0409
For three decades, the Judge
David L. Bazelon Center for Mental Health Law has been the nation's
leading legal advocate for people with mental disabilities. Our
precedent-setting litigation has outlawed institutional abuse and won
protections against arbitrary confinement. In the courts and in
Congress, our advocacy has opened up public schools, workplaces, housing
and other opportunities for people with mental disabilities to
participate in community life. Epilepsy Foundation
8301 Professional Place
Landover, MD 20785
Phone: (800) 332 1000
The Epilepsy Foundation is the
national voluntary agency solely dedicated to the welfare of the more
than 3 million people with epilepsy in the U.S. and their families. The
organization works to ensure that people with seizures are able to
participate in all life experiences; to improve how people with epilepsy
are perceived, accepted and valued in society; and to promote research
for a cure. International Rett Syndrome Association (IRSF)
4600 Devitt Drive
Cincinnati, OH 45246
Phone: 1-800-818-7388
The core mission of the IRSF is
to fund research for treatments and a cure for Rett syndrome while
enhancing the overall quality of life for those living with Rett
syndrome by providing information, programs, and services. Learning Disabilities Association of America (LDA)
4156 Library Road Pittsburgh, PA 15234 (412) 341-1515
(412) 344-0224 (Fax)
LDA is the largest non-profit volunteer organization advocating for individuals with learning disabilities and has over 200 state and local affiliates in 42 states and Puerto Rico. The membership, composed of individuals with learning disabilities, family members and concerned professionals, advocates for the almost three million students of school age with learning disabilities and for adults affected with learning disabilities.
Mental Health America
2000 N. Beauregard Street
6th Floor Alexandria, VA 22311
Phone: (703) 684-7722 Toll free: (800) 969-6642 TTY: (800) 433-5959 Fax: (703) 684-5968 Mental Health America (formerly
known as the National Mental Health Association) is the country’s
leading nonprofit dedicated to helping ALL people live mentally
healthier lives. With our more than 320 affiliates nationwide, we
represent a growing movement of Americans who promote mental wellness
for the health and well-being of the nation – everyday and in times of
crisis. Multiple Sclerosis Foundation (MSF)
6350 North Andrews Avenue
Fort Lauderdale, Florida 33309-2130 800-225-6495 (Administrative) 888-MSFOCUS (Support) www.msfocus.org./ A predominantly service-based,
non-profit organization, The Multiple Sclerosis Foundation provides a
comprehensive approach to helping people with MS maintain both their
health and well-being. We offer programming and support to keep them
self-sufficient and their homes safe, while our educational programs
heighten public awareness and promote understanding about the illness. National Alliance for the Mentally Ill (NAMI)
Colonial Place Three
2107 Wilson Blvd., Suite 300 Arlington, VA 22201-3042 Main: (703) 524-7600
Fax: (703) 524-9094 NAMI recognizes that the key
concepts of recovery, resiliency and support are essential to improving
the wellness and quality of life of all persons affected by mental
illness. Mental illnesses should not be an obstacle to a full and
meaningful life for persons who live with them. NAMI will advocate at
all levels to ensure that all persons affected by mental illness receive
the services that they need and deserve, in a timely fashion. National Attention Deficit Disorder Association (ADDA)
PO Box 7557
Wilmington, DE 19803-9997 Phone/Fax: (800) 939-1019
Email: adda@jmoadmin.com The mission of ADDA is to
provide information, resources and networking to adults with AD/HD and
to the professionals who work with them. In doing so, ADDA generates
hope, awareness, empowerment and connections worldwide in the field of
AD/HD. National Center for Learning Disabilities (NCLD)381 Park Avenue South, Suite 1401 New York, NY 10016 (212) 545-9665 (Fax) The National Center for Learning Disabilities (NCLD) works to ensure that the nation's 15 million children, adolescents and adults with learning disabilities have every opportunity to succeed in school, work and life. NCLD provides essential information to parents, professionals and individuals with learning disabilities, promotes research and programs to foster effective learning and advocates for policies to protect and strengthen educational rights and opportunities.
National Dissemination Center for Children with Disabilities (NICHCY)
P.O. Box 1492
Washington, DC 20013 1.800.695.0285 (Voice/TTY) 202.884.8200 (Voice/TTY) 202.884.8441 (Fax) Email: nichcy@aed.org We are the center that provides
information to the nation on disabilities in children and youth;
programs and services for infants, children, and youth with
disabilities; IDEA, the nation's special education law; No Child Left
Behind, the nation's general education law; and research-based
information on effective practices for children with disabilities. National Down Syndrome Society (NDSS)
Goodwin Family Information and Referral Center
NDSS 666 Broadway, 8th floor
New York, New York 10012
1-800-221-4602 (Toll-Free Hotline)
email hotline info@ndss.org
The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued members of welcoming communities.
National Fragile X Foundation
PO Box 37
Walnut Creek, California 94597 Toll-Free: 800-688-8765 Fax: 925-938-9315
The National Fragile X
Foundation unites the Fragile X community to enrich lives through
educational and emotional support, promote public and professional
awareness, and advance research toward improved treatments and a cure
for Fragile X. National Organization for Rare Disorders (NORD)
55 Kenosia Avenue
PO Box 1968 Danbury, CT 06813-1968 Phone: (203) 744-0100
Toll-free: (800) 999-6673 (voicemail only) TDD Number: (203) 797-9590 Fax: (203) 798-2291
www.rarediseases.org/ The National Organization for
Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of
voluntary health organizations dedicated to helping people with rare
"orphan" diseases and assisting the organizations that serve them. NORD
is committed to the identification, treatment, and cure of rare
disorders through programs of education, advocacy, research, and
service.
National Spinal Cord Injury Association (NSCIA)
1 Church Street #600
Rockville, MD 20850 Toll-free Helpline: (800) 962-9629
Fax: (866) 387-2196 Founded in 1948, the National
Spinal Cord Injury Association is the nation's oldest and largest
civilian organization dedicated to improving the quality of life for
hundreds of thousands of Americans living with the results of spinal
cord injury and disease (SCI/D) and their families. This number grows by
thirty newly-injured people each day. P.O. Box 2345
Rockville, MD 20847 Phone: 1-800-789-2647 Monday through Friday, 8:30 A.M. to 12:00 A.M., EST Fax: 240-221-4295 http://mentalhealth.samhsa.gov/ The Substance Abuse and Mental Health Services Administration's (SAMHSA) National Mental Health Information Center provides information about mental health via a toll-free telephone number (800-789-2647), this web site, and more than 600 publications. The National Mental Health Information Center was developed for users of mental health services and their families, the general public, policy makers, providers, and the media. |
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Disability Advocacy Organizations |