Analysis of Opposition to Kendra's Law (Two documents)

This page contains two documents. The documents give reasons put forth by NYAPRS and others to oppose Kendra's Law and contrast them with the facts.

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Analysis of NYAPRS Testimony Concerning Kendra’s Law

 

In 1999, NYAPRS opposed Kendra’s Law based on the premise it wouldn’t work. The legislature enacted the program for five years to study it. When the 2005 study was released, it showed dramatic declines in violence, incarceration, hospitalization and increases in quality of life measures. In 2005, NYAPRS raised new concerns. Again, the legislature put off making the law permanent so their new concerns could be studied. That research was released in 2009. Where they studied the same issues, the 2005 and 2009 findings were consistent with the 1998 findings of Policy Research Associates and the 1999 findings of the NYC DMH Study)* of the Bellevue Outpatient Commitment Pilot, (the predecessor of Kendra’s Law). They are also consistent with studies of AOT in Florida, Virginia and elsewhere.

 

Following is a comparison of the testimony given by Harvey Rosenthal** in opposition to Kendra’s Law with scientific literature and research results of the three most recent studies in New York.

 

NYAPRS Testimony

Research Findings

Study

“In closing, there is simply no proof to make Kendra's Law permanent“

• 74% fewer participants experienced homelessness

• 77% fewer experienced psychiatric hospitalization

• 83% fewer experienced arrest

• 87% fewer experienced incarceration.

• Individuals in Kendra's Law were also more likely to regularly participate in services and take prescribed medication.

• On average, AOT recipients' length of hospitalization was reduced 56% from pre-AOT levels.

• 55% fewer recipients engaged in suicide attempts or physical harm to self

• 49% fewer abused alcohol

• 48% fewer abused drugs

• The number of individuals exhibiting good adherence to medication increased by 51%.

• The number of individuals exhibiting good service engagement increased by 103%.

March 2005 “Kendra’s Law: Final Report on the Status of Assisted Outpatient Treatment.” N.Y. State Office of Mental Health

 

“There is no proof that people with severe psychiatric disabilities are more violent”

• People with mental illness are not more violent than others.

• People with serious mental illness are not more violent than others.

People with serious mental illness who are not in treatment are more violent as a group than others.

Fact sheet attached.

 “(There is), no proof to therefore to suggest that this initiative is an effective public safety measure”

• 47% fewer physically harmed others,

• 46% fewer damaged or destroyed property

• 43% fewer threatened physical harm to others.

• Overall, the average decrease in harmful behaviors was 44%.

March 2005 “Kendra’s Law: Final Report on the Status of Assisted Outpatient Treatment.”

• Patients given mandatory outpatient treatment - who were more violent to begin with - were nevertheless four times less likely than members of the control group to perpetrate serious violence after undergoing treatment.

February 2010 Columbia University. “Effectiveness and Outcomes of Assisted Outpatient Treatment in New York State” Phelan, Sinkewicz, etc. Psychiatric Services, Vol 61. No 2

“(There is) no proof that court orders, rather than more responsive, more accountable, better coordinated and funded services, have created the improved outcomes”

The likelihood of a hospital admission over six months was  “highly statistically significant” and lower among AOT recipients than among voluntary recipients.

• AOT patients were less likely to be arrested than their voluntary counterparts

• Persons receiving AOT for 12 months or more had a substantially higher level of personal engagement in treatment than those receiving services voluntarily.

June 2009 Duke University  “New York State Assisted Outpatient Treatment Program Evaluation.” Swartz, Swanson, Steadman, Robbins, and Monahan.

“In fact, the only incontrovertible truth we can agree on is which group has been the greatest target of court mandated care and that is people of color and that is dead wrong.”

We find no evidence that the AOT Program is disproportionately selecting African Americans for court orders, nor is there evidence of a disproportionate effect on other minority populations. Our interviews with key stakeholders across the state corroborate these findings.

Parallel analyses for Hispanics and other minority populations show this same pattern and no appreciable racial disparities are evident in selection of these groups for AOT.

June 2009 Duke University

“AOT …creates an atmosphere of distrust between the consumer and the provider. *It sets the providers against the very people they serve”

 

• Improved Access to Services. AOT has been instrumental in increasing accountability at all system levels regarding delivery of services to high need individuals. Community awareness of AOT has resulted in increased outreach to individuals who had previously presented engagement challenges to mental health service providers.

• Improved Treatment Plan Development, Discharge Planning, and Coordination of Service Planning. Processes and structures developed for AOT have resulted in improvements to treatment plans that more appropriately match the needs of individuals who have had difficulties using mental health services in the past.

• Improved Collaboration between Mental Health and Court Systems. As AOT processes have matured, professionals from the two systems have improved their working relationships, resulting in greater efficiencies, and ultimately, the conservation of judicial, clinical, and administrative resources.

 • There is now an organized process to prioritize and monitor individuals with the greatest need;

 • AOT ensures greater access to services for individuals whom providers have previously been reluctant to serve;

• Increased collaboration between inpatient and community-based mental health providers.

March 2005  “Kendra’s Law: Final Report on the Status of Assisted Outpatient Treatment.”

 

“Over the past decade, the debate over the justness and the actual impact of the use of court-ordered outpatient mental health treatment has emerged as one of the most contentious controversies in our mental health system.”

There is little albeit vocal, opposition to Kendra’s Law

  Democrats and Republicans both overwhelmingly supported enactment of Kendra’s Law (Senate 49-2, Assembly 142-4).

• Liberal (NY Times, Newsday) and conservative (Post, Daily News) media supported enactment of Kendra’s Law.

• Mental Illness advocates (NAMI, GNYHA, APA); Public Safety Advocates (NYSCOP, DAASNY); and Health care workers (PEF, APA, Psychiatric Nurses) support Kendra’s Law

Source: Various

 • “At present, 42 states have laws mandating outpatient care for individuals with severe mental illnesses. ***“

• “Outpatient commitment for people with mental illnesses (has) been heralded as necessary and effective by some, and as overly coercive and counterproductive by others — but our study has found few of the negative consequences feared by critics of Kendra’s Law. The real take home message of the research, as Dr. Link sees it, is that a policy that provides enhanced treatment for people with serious mental illnesses can improve their life circumstances and reduce the risk of violence.

February 2010, Columbia University

“Involuntary outpatient commitment (is) based on false premise (that)… People with psychiatric disabilities are frequently so sick that they can't understand their need for care, leading to avoidance and noncompliance”

Impaired awareness of illness (anosognosia) is caused by damage to specific parts of the brain, especially the right hemisphere.  It affects approximately 50 percent of individuals with schizophrenia and 40 percent of individuals with bipolar disorder.  When taking medications, awareness of illness improves.

 

• “ Lack of Insight in Psychotic and Affective Disorders: A Review of Empirical Studies.” Harvard Review of Psychiatry, May/June: 22-33, 1994.

• Archives of General Psychiatry 1994 (51): 826-836 Amador

“Forced treatment unjustly violates people's rights.”

(I)t is now well settled that Kendra’s Law is in all respects a constitutional exercise of the states police power, and its parens patriae power. Further, the removal provisions of the law have withstood constitutional scrutiny.

June 2009 Duke University (appendix)

““Forced treatment …erodes their faith in the service system.”

• 87% of participants interviewed said they were confident in their case manager's ability to help them

• 88% said they and their case manager agreed on what is important for them to work on.

• 75% reported that AOT helped them gain control over their lives,

• 81% said AOT helped them get and stay well

• 90% said AOT made them more likely to keep appointments and take medication.

March 2005 “Kendra’s Law: Final Report on the Status of Assisted Outpatient Treatment.”

(P)eople who underwent mandatory treatment reported higher social functioning and slightly less stigma, rebutting claims that mandatory outpatient care is a threat to self-esteem.

February 2010, Columbia University

 

*1999 NYC Dept. of Mental Health, Mental Retardation and Alcoholism Services. H. Telson, R. Glickstein, M. Trujillo, Report of the Bellevue Hospital Center Outpatient Commitment Pilot

* Mr. Rosenthal is Executive Director of NYS Association of Psychosocial Rehabilitation Services (NYAPRS). NYAPRS is a trade association of providers of non-medical services to mental health consumers who are willing to voluntarily accept services. The quoted testimony was presented at the April 8, 2005 Public Hearing on Kendra's Law in NYC co-chaired by Assembly members Rivera and Lentol.

*** In April 2010 Maine became the 43rd State to adopt AOT. It was modeled on NY’s Kendra’s Law.

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Analysis of Opposition to Kendra’s Law from "We the People"

 

In anticipation of a meeting to be held April 23, 2010, with Assemblyman Felix Ortiz, Chair of the Assembly Mental Health Committee, a leader of the opposition to Kendra’s Law sent a memo to her supporters explaining the points she intends to raise.  This presented an opportunity to analyze objections and compare them with the relevant research. Following is the full text of the communications with footnotes added that address the concerns raised. 

Date: 23 April 2010 

INVOLUNTARY OUTPATIENT TREATMENT EQUALS FORCED TREATMENT EQUALS TORTURE. 

NEW YORK STATE FACES INVOLUNTARY OUTPATIENT TORTURE BECOMING PERMANENT. 

YOU CAN HELP STOP IT. 

On Tuesday, April 27, 2010, WE THE PEOPLE and allies will be meeting with Assemblyman Felix Ortiz, Chair of the Mental Health Subcommittee to oppose Involuntary Outpatient Torture[i] being made permanent or being extended. "Kendra's Law" which exhibits structural and institutional racism[ii] and classism was suppose to sunset in June 2010 - and the new proposed law is even more social control than its previous version. 

The proposed new law includes provisions such as increasing the original court order from 6 months to one year;[iii] not requiring doctor testimony[iv], requiring fiscal management,[v] allowing an expired order to be renewed 60 days after it expires without needing a new hearing[vi], and viewing "non-compliance" with drugs, urine or blood tests, or drugs and alcohol use as grounds for "dangerousness"[vii]

Hundreds of millions of tax-payer dollars[viii] have been spent on Kendra's Law legislation, which was first enacted in 1999 after a young woman - Kendra Webdale - died when struck by a train after being pushed off a subway platform by Andrew Goldstein[ix]. The law allowed for people who were accused of "mental illness"[x] but not considered a present danger[xi] to be court ordered to receive outpatient drug treatment.[xii]

Andrew Goldstein was an individual who had been institutionalized and drugged.[xiii] After he was released from lock-up he sought voluntary outpatient treatment.[xiv] However, he was repeatedly turned away by "mental health" treatment providers. He received no compassion, - no support, - no services, - not even the medications he was accustomed to and was willing to take[xv]. He was refused help- and then pushed Kendra Webdale - and then got attention. He would not even have qualified or been subject to the law named after his victim.[xvi]

This law is just an attempt to draw attention away from the real problem, which is lack of real help and assistance from providers[xvii], and a knee-jerk response of social control and blaming the victim.[xviii]

WE THE PEOPLE are survivors and escapees of the current treatment methods of organized psychiatry[xix]. WE THE PEOPLE maintain that too many people have been victimized by experimentation, drugging, and electro-convulsive "therapy". They continue to state national statistics that people who have been treated as "mentally ill" die an average of 25 to 30 years younger than their contemporaries.[xx]

WE THE PEOPLE view the "mental illness industry" as cruel, costly, powerful, and profitable. As citizens of the United States we maintain that the human rights of ALL people must be protected and promoted. When the needs of people are met, force is not necessary. Forced drugging and unwanted "treatment" is torture. We will be heard.

ACTION: Please sign on your support and offer comments on your opinion at (website deleted) All comments will be printed and presented to Assemblyman Ortiz on Tuesday, April 27, 2010. Please act now. If Involuntary Outpatient Torture becomes permanent in New York, it will set a standard for the country and the world to follow. Please Support us in New York State, today! 


EXPLANATORY NOTES

[i] “Assisted Outpatient Treatment”, also known as Kendra’s Law.

[ii] When the law was set to expire in 2005, to prevent the law from being renewed, opponents charged it was “racist.” Instead of making the law permanent, the legislature decided to renew it for five years and investigate the charge. The researchers at Duke University released their study in 2009.

“We find no evidence that the AOT Program is disproportionately selecting African Americans for court orders, nor is there evidence of a disproportionate effect on other minority populations. Our interviews with key stakeholders across the state corroborate these findings.”

What they defined as ‘racism’ was persons of color and Hispanics getting equal access to care. The number of individuals in Kendra’s Law is reflective of the number of people who receive public treatment and the presence of diversity in New York City, where AOT is used most often.

[iii] There is no minimum length of a court order in existing legislation. It allows initial court orders to be a maximum of 6 months. The Gunther/Young bills have no minimum term for court orders. They propose to increase the maximum allowable to one-year based on research by Duke University showing individuals in Kendra’s Law do better if they remain in the program for a year versus 6 months, and those improvements continue even after the order ends as long at the individual had been in Kendra’s Law for one-year.

[iv] Doctor testimony is required. The new bill gives the client and their court appointed lawyer the right to voluntarily stipulate to the doctors findings and waive the doctor’s personal appearance. Researchers at Duke Univ. found the medical issues and proposed treatment plan are not in dispute. and this provision could saves counties time and money.

[v] The new law codifies a court decision that “representative payee’ services may be ordered if they would benefit the patient. Usually this means paying their benefits to a third party who helps them manage their money so they have enough for housing, food, etc. and don’t use the money for drugs.

[vi] The bill fixes a crack in the mental health system whereby an individual who is in AOT may have their order expire without being considered for renewal.

[vii] The non-compliance must be substantial. In that case, since the individual is in material violation of a court order they can be taken to a hospital for an examination to see if assisted inpatient treatment is needed. If it is not, the patient is released.

[viii] An annual total of $32 million was allocated for the AOT program (Source: 2009 Duke Univ. Study).

[ix] The law was proposed before Ms. Webdale was pushed to her death. It was first proposed by families of the mentally ill in the 1980s. The law at that time required an individual to be “danger to self or others” before they could be treated over objection. Families wanted a law that would prevent dangerousness, rather than require it.  The law they suggested was piloted in NYS as the Bellevue Outpatient Commitment Pilot Program (starting around 1995). In 1999, when Ms. Webdale was pushed, the public safety benefits of the pilot program became apparent, and advocates for the mentally ill were joined by those in the public safety community, hospital workers, hospital associations and others. The result was the passage of Kendra’s Law.

[x] The law lists strict criteria the courts must find before individuals can be ordered into treatment. A finding of mental illness is not sufficient.

[xi] There are seven specific criteria that must be met before courts can order individuals to receive AOT. One of them is, 
in view of his or her treatment history and current  behavior,  is   in  need  of assisted outpatient treatment in order to prevent a relapse   or deterioration which would be likely to result in serious harm to  the   person or others:

[xii] Medications are one of the services the courts may order patients to accept. The only mandated service is case management.

[xiii] Hospitalized and given medications to help alleviate his schizophrenia.

[xiv] After starting to deteriorate as a result of refusing to continue on his medications and in community-based treatment.

[xv] Andrew Goldstein turned up at hospitals after he went off medications. Many feel if he had been under court order to receive care, he would not have gone off treatment. In addition, and importantly, the law not only commits the individual to receive care, it commits the health system to provide it. Had he been under court order and needed care, there would have been an obligation to provide it and he might not have been turned away.

[xvi] We are unaware on what basis this claim is made.

[xvii] It is true that providers of mental health services often refuse to admit the most seriously ill to their programs. One of the more important components of Kendra’s Law is that it not only commits the individual to receive care, it “commits” the mental health system to provide treatment. Kendra’s Law helps improves the treatment systems response to the needs of the seriously ill. Researchers at Duke who conducted the study the legislature requested found:

·       It is also important to recognize that the AOT order exerts a critical effect on service providers stimulating their efforts to prioritize care for AOT recipients.

·       AOT has been instrumental in increasing accountability at all system levels regarding delivery of services to high need individuals. Community awareness of AOT has resulted in increased outreach to individuals who had previously presented engagement challenges to mental health service providers.

·       Processes and structures developed for AOT have resulted in improvements to treatment plans that more appropriately match the needs of individuals who have had difficulties using mental health services in the past.

Researchers at OMH found:

·       Improved Access to Services. AOT has been instrumental in increasing accountability at all system levels regarding delivery of services to high need individuals. Community awareness of AOT has resulted in increased outreach to individuals who had previously presented engagement challenges to mental health service providers.

·       Improved Treatment Plan Development, Discharge Planning, and Coordination of Service Planning. Processes and structures developed for AOT have resulted in improvements to treatment plans that more appropriately match the needs of individuals who have had difficulties using mental health services in the past.

·       Improved Collaboration between Mental Health and Court Systems. As AOT processes have matured, professionals from the two systems have improved their working relationships, resulting in greater efficiencies, and ultimately, the conservation of judicial, clinical, and administrative resources.

• There is now an organized process to prioritize and monitor individuals with the greatest need;

• AOT ensures greater access to services for individuals whom providers have previously been reluctant to serve;

• Increased collaboration between inpatient and community-based mental health providers.

[xviii] The development of Assisted Outpatient Treatment was based on the desire to help individuals with serious mental illnesses who are so ill, they cannot recognize they are ill (anosognosia).  It properly balances the civil rights of individuals with mental illness, their right to treatment, and the safety needs of the public. It is a more compassionate, less expensive than it’s alternative: involuntary inpatient commitment.

[xix] Most consumers who have experienced the program do not share the author’s opposition to Kendra’s Law.  In 2010, Researchers at Columbia University found:

Patients who underwent mandatory treatment reported higher social 
functioning and slightly less stigma, rebutting claims that mandatory 
outpatient care is a threat to self-esteem.



In 2009, researchers at Duke University found:

Despite being under a court order to participate in treatment, current AOT recipients feel neither more positive nor more negative about their treatment experiences than comparable individuals who are not under AOT.”

In 2005, OMH researchers found:

·       87% of participants interviewed said they were confident in their case manager's ability to help them

·       88% said they and their case manager agreed on what is important for them to work on.

·       75% reported that AOT helped them gain control over their lives,

·       81% said AOT helped them get and stay well

·       90% said AOT made them more likely to keep appointments and take medication.

[xx] We don’t know where this statistic comes from or its relationship to Kendra’s Law. Researchers found Kendra’s Law recipients had a 55% reduction in suicide attempts or physical harm to self. This would be expected to, although it hasn’t been studied, to lead to an increase in life span, not a decrease.  kendraslaw.org  

Next:

This was prepared by Coalition to Make Kendras Law permanent. nykendraslaw@gmail.com