HOLD THE MILK AND EGGS PLEASE
This site is about my family's personal journey through the world of living with Food Allergies and Eosinophilic Esophagitis.
I am not a doctor or a medical professional if you find anything in this site that you feel could help your child you should always consult with your doctor.
Last updated January 20, 2010
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This site is not meant to recreate from scratch the amazing resources found on the web and in our local towns. Rather it is intended to tell a story that hopefully will help other families in our situation who are searching for answers. Not just for a diagnosis or a cure but for how it is possible to live a life that is normal under stressful and far from normal circumstances. It is my family's story which began before the disease that has begun to scar my little boy's esophagus and before his first anaphylaxis reaction. It began like all children's stories: his birth. My son was born a healthy boy at 10 Ibs. When he came into this world he opened his big eyes and held onto my husband's finger. Like all parents we felt lucky that after all the ups and downs and scares during the pregnancy that our son had been born healthy with all his parts both inside and out working wonderfully. He and I didn't even have a problem figuring out the breast feeding. For four months he seemed so healthy and always happy. Of course he had a hard time sleeping through noises but he would fall asleep and sleep well if everything was quiet. He hated being put into his car seat and hated it even more when the car stopped or if he had to listen to a song that didn't appeal to his musical ear. He also didn't like it so much if mommy didn't hold him or put him in the swing for nap time. But, after all he is a baby and babies get fussy. We thought everything was great and so when he looked at our food longingly at the age of 3 and half months we thought why not, let's call the doctor and see if it's ok for him to start rice cereal... I didn't take food allergies so seriously then, I mean peanut of course but like so many other people I didn't understand what it meant. I also just thought like anybody that it wouldn't happen to us. I say us because food allergies affects everyone in the family not just the child or person with the allergies. However, I still did what the doctors said and followed the instructions of introducing one new food item every 3 days after being on the rice cereal for a while. At first I didn't notice the tall tale sign of food allergies for what it was the warning of what was to come. My son started to have exzcema like so many children with food allergies. Because we started feeding him in the summer we just assumed it was a heat rash and so did his pediatrician at the time. Nonetheless it wasn't a pretty rash it started to spread and puss. But, we were just given topical antibiotics and told once it got cooler things would get better. As new parents we expected that. This was our first grain of sand that became an ant hill over the proceeding months. If you are interested in my son's story for ideas, curiosity or just to know you aren't alone follow the links to your left. If you are interested in other useful sites on the web as well as places to buy great products for your child with allergies or Eosinophilic diseases follow the links to your right.
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Useful sites on the web to help you deal with food allergies and Eosinophilic Disorders.Kids with Food Allergies A great online support group with the most incredible women you will ever meet. Food Allergy and Anaphylaxis Network (FAAN) A great resource for books, label cards, advocacy and research, including clinical trials. You can find a list of local support groups here. American Partnership for Eosinophilic Disorders A great resource for Eosinophilic Disorders. They have the most incredible conference and are creating support groups around the country. Eosinophilgastro Yahoo Group You can sign up and become a member of the largest Eosinophilic support group on the web. Mosaic Kids If you live in the Denver Metro area this is a great support group. Meetings are th first Monday of every month at 6:30 pm at the Lonetree Library. MedicAlert Medic braclets that can save your child's life. These are especially great for children with multiple food allergies and medical issues that will not all fit on the little pendant. Bjort and Company Funny apparal for food allergies. Check My Tag Great tags and clothing to help keep your kid safe. Beyond A Peanut This is a wonderful place if your child has a Peanut allergy. There are some great products and ideas. Nanny and Cook If you are looking for helpw with shopping, meal planning, cooking and your child and live in teh Colorado area maybe she can help. Avoiding Milk Protein A resource about avoiding milk including Recipes, tips, and other useful information about Milk allergies and other allergens. |
This site is in honor of my my beautiful son who smiles through things that would cripple the strongest and bravest amoung man.