Addresses For free information from the government, try: 1) 1-800-FOR-CANCER. This is the NCI info-line. 2) National Heart, Lung & Blood Institute. The institute's address is NHLBI, National Institutes of Health, Building 31, Room 4A-21, 9000 Rockville Pike, Bethesda, Md. 20892. Telephone: 301 251 1222. 3) National Organization for Rare Diseases (NORD) 4) Dr. Richard Silver, New York, NY, Weill Cornell Medical College 212-746-2098 http://www.weillcornell.org/richardtsilver/index.html The following two addresses also list hematologists involved in MPD research. Donations are accepted and should be specified as to the area of research desired (i.e. PV, AMM, etc.). 5) Dr. Stephen D. Nimer, Memorial Sloan Kettering Cancer Center, 1275 York Avenue, New York, NY 10021, 212-639-7871. 6) Dr. Jerry Spivak, Hematology Division, Johns Hopkins University, School of Medicine, Traylor Bldg., Room 924, Baltimore, Maryland 21205. Fax: 410-955-0185. Phone: 410-955-5454. http://www.hopkinsmedicine.org/hematology/faculty_staff/spivak.html 7) Association Euro-Vaquez, 12 Rue Merlin, 75011 Paris, France. phone: 01 43 79 27 48. e-mail: vaquez@wanadoo.fr (This is a European organization of patients and professionals interested in research and concerns of polycythemia vera.) The government offices will both send you out good but somewhat dated information. Most research you might read will be outdated. Take any and all older mortality estimates with a grain of salt. They are outdated. There are people diagnosed years earlier with PV or ET now living active lives into their eighties and beyond. The following hematologists were listed in American Health Magazine some Hematology/oncology |