http://wwwicic.nci.nih.gov/ Homepage of the National Cancer Institute with access to PDQ and other information on MPD for patients and physicians. The patients' search engine provides fact sheets on a number of treatments & concerns - pruritus, carcinogens, biological modifiers, hair dye, etc. Also check the MPD clincial trials under the health professionals' information. http://www.clinicaltrials.gov Easily searchable database of all clinical trials. Search for a trial near you. http://www.ncbi.nlm.nih.gov/sites/entrez/ Pubmed, a source for locating titles of medical journal articles, many with abstracts online. http://oncolink.upenn.edu/ A link to useful cancer information including current treatment trials, financial/insurance assistance, and bone marrow/stem cell transplant information. http://www.mpdfoundation.org The MPD Foundation's primary mission is to stimulate and finance original research in pursuit of new treatments and eventually a cure for the myeloproliferative disorders. http://www.baysidehealth.org.au/uploads/departmentfiles/18_2_PatientInfoSheet0805_2.pdf
Victoria AU spleen registry. In Victoria, AU, there is a Spleen Registry at the Alfred Hospital that aims to keep AU people who have had a splenectomy up to date with information about relevant treatment and send reminders for vaccinations. |