My name is Tommy Robinson and i'm ten years old. I was born in Nottingham on the 1st April 1999 and I live with my mum, my dad and my sister. We moved up to Barnsley when i was 9 months old in 1999. This is when my mum showed the first signs of having Hughes. She was diagnosed in 2007. I just wanted to start this site to meet other kids who have parents or family with Hughes Syndrome or have it themselves. Also kids whose family have lupus are welcome to join too. It is free to join this site, so looking forward to meeting you. To join the site, you will need to click onto sign in at the bottom of the page. If you already have a google account, it should send you an email to say you can join straight away. if you havent got a google account, you just need to create a new account with google and think of a password, then they email to your usual email address to say you can join straight away. You will be able to read the other pages when you have signed in at the bottom of this page :) If you want to make a post, write it and then when you have written it there is a SAVE button at the top of the page, press that and then it will save. |