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After our daughter was diagnosed with Prader-Willi Syndrome, Shawn and I joined the Foundation for Prader-Willi Research.
The Foundation for Prader-Willi Research was established in 2003 by parents of children with Prader-Willi syndrome (PWS). Today, FPWR is composed of parents, family members, researchers, and others who are interested in addressing the many issues related to PWS, including childhood obesity and autism spectrum disorders.
The mission of FPWR is to eliminate the challenges of Prader-Willi syndrome through the advancement of research. High quality research will lead to more effective treatments and an eventual cure for this disorder. By working together, we intend to free our loved ones from the burden of PWS, allowing them to lead full and independent lives. |
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Our Mission |