The art students and faculty at Highland Park High School are organizing an art auction to raise money for Lafora Research. The faculty sponsors of this fundraiser are Mrs. Sarabeth Smetzer and Mr. Chris Fullwood. More information on the disease can be found at http://www.chelseashope.org/what_is_lafora.html. Funds from this ongoing auction will be sent periodically to Chelsea's Hope to be then forwarded to the University of California, Los Angeles, Medical Sciences Development where Lafora research is performed by a group led by Dr. Antonio V. Delgado-Escueta, Professor of Neurology at David Geffen School of Medicine at UCLA. The auction was initiated and coordinated by Diana Antohe in Fall 2009 and continued throughout the 2009-2010 school year. The auction will continue in the 2010-2011 school year when it will be coordinated by Kate Arvesen.
Why Lafora? The attention on Lafora was unfortunately brought up by a HPHS student: Adela Richer (http://www.chelseashope.org/adela_richer.html), class of 2008. Her situation was typical: it took seven years to diagnose her condition correctly, and modern medicine cannot offer an effective treatment. Lafora is a fatal, incurable, very rare genetic disease that strikes seemingly healthy children in their adolescent years. It causes seizures, muscle spasms, difficulty walking, dementia, and eventually death. Lafora is little known even among neurologists, and thus often misdiagnosed. It is very likely that the actual number of children affected by this horrible disease is much larger than currently estimated. Because of its rarity, research
interest and funding are very low. This makes every little contribution very
important. Please read more about Lafora so you will understand the gravity of
this disease. Through your support, the Art students at Highland Park High School
would like to raise the public awareness and to hopefully make a difference in
the research towards a cure.
How to participate 1) Check the Current Auction Art Pieces to make your pick and to get the item numbers for the pieces that you are interested in. 2) Send email to karvesen93@gmail.com
with the item numbers, your bid for each piece and contact information. Please include Lafora Art Auction in the subject line. 3)
The web page will be updated weekly with the current bids
so, if you really want a specific art piece, check on it before the bidding
period ends. 4) At the end of each auction period the winning bids will be notified by email. 5) If you receive a notification about a winning bid mail a check (payable to "Highland Park High School") with "Lafora Art Auction" written in the memo area. Also provide information for delivery or mailing. Please include $10 for shipping if you are out of Dallas metro area. The mailing address is: Kate Arvesen c/o Mr. Chris Fullwood Highland Park High School 4220 Emerson Ave. Dallas, Texas 75205 6)
The art pieces will be delivered (Dallas metro area) or mailed after the
receipt of the payment. 7) This is an ongoing project throughout the whole school year, so please come back and visit this web page at the beginning of every month to see new art pieces. Questions Send emails to karvesen93@gmail.com with any questions on the process.
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