Welcome to the Alkaptonuria Society's website

Our aim is simple - to create an information and support network for those people diagnosed with the condition. Our job is to find the latest news, research and treatments and provide you with the best information we can. But remember this is your web and we hope you will share your news and experiences.

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Our new website is now in French, English, Italian, German and Russian!

The AKU Society is pleased to announce the launch of its multilingual website, now available online at: www.alkaptonuria.info Go to article...

Obituary: John W 'Johnny' Harris Jr

John W 'Johnny' Harris Jr, 63, of Sanders Drive, died on Sunday 17 July 2005 at University Hospital. Go to article...

Research: More patients needed for AKU study

As some of you may know, Dr Bill Gahl and his team at the National Institutes of Health in the US are carrying out a study of a drug called Nitisinone (or NTBC) to see if it could help reduce the damage AKU causes to the body. Go to article...

Obituary: June Bateman

June Bateman, who was suffering from Alkaptonuria, died on 25 April 2005. Go to article...

Please give us your unwanted old and new foreign notes and coins!

Did you know that there's £95 million in foreign notes and coins lying around people's houses? What a waste of money that could be put to good use! Go to article...

Would you like to fundraise for AKU?

We're looking for local community fundraisers to raise money for our work. Would you be interested? Go to article...

AKU survey reminder: for those who haven’t responded yet

The AKU Society is working on a business plan and would like to know which activities our supporters think are the most important. If you haven't already done so, please respond whether you have Alkaptonuria or not. Go to article...

The Alkaptonuria Society at the House of Lords

The Alkaptonuria Society’s patron, the Lord of Little Witley & Hurcott, Aarron Kenneth Ward-Atherton, hosted an event at the House of Lords on 8 April for the launch of a new journal, Complementary Therapies in Clinical Therapies, which trustees of the Alkaptonuria Society attended. Go to article...