A Fibromite's Tale
One Survivor's story

Fibromite Questionnaire

 

Book Intro

 

Definitions

 

Daily Inspiration

 

FMS Myths Debunked

This is the research part of a new, hopefully innovative book about Fibromylagia Syndrome.

The premise of the book is to teach the newly diagnosed, their families and their doctors what it means to live with Fibromyalgia.  The book will not be just my story, which is a roller coaster in itself, but also the experiences of others in the FMily.

In order to include other people's stories I have a questionnaire I need people to answer.  It seems kind of long if you've got bad fibrofog, but it's simple, I promise. 

 

Why did I chose to start this project?

Well, I have FMS.  I have a family.  I had a husband.  I have kids.  I have doctors who don't understand.  I have 2 out of 3 parents who don't understand.   I have one parent with FMS.  Most likely my 7 year old daughter has it too.

 

I'm tired of people not getting it.  I'm tired of being told "Oh, really?  But you look fine."  I'm tired of hurting without end.  Although writing the book won't end the pain it will do one really big thing for me, and for many others, it will end my feeling that no matter how many other people have FMS, I am suffering alone because no one feels like I do.

And isn't that a good thing?

 

On subsequent pages you will find definitions (like Fibromite, FMily), a copy - with full credit - of a wonderful article, the questionnaire and perhaps a daily funny/inspiration.  Or semi-daily, depending on how often I remember to post one.  And the introduction to my book.  First draft of it, but right now, it'll do.

 

May your days be as pain less as possible and you have all the support you need.

 

Jenn

 

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