This is the page that I have mentioned under Support and Supporters. I decided to give it it's own subpage. So far we're starting small, but once word gets out about this I'm hoping more people want involved.
First of all we have:
Bonnie Miley: "I would love to be in contact with more families/ACCers/parents of ACCers in South Carolina or the southeast." Please contact her through email here: bmiley@sc.rr.com
Jimmy: He's wanting to find fellow ACCers in Pennsylvania. "Any ACCers from PA or MD ? add me im 18 with complete ACC from PA" Please e-mail him at slimjim21591@aim.com you can also find him on Myspace here: http://www.myspace.com/slimjim21591
Jeffrey Kaufman: a 34 year old ACCer from NJ would love to be in touch with other ACCers and families. "I have completed a masters degree and am very familiar with the many struggles of accommodation for schooling. You can email me at jeffreykaufman@hotmail.com or find me at Facebook under the same." Araceli Sandoval: I am the mother of a 21 month old baby girl with complete ACC, got diagnosed at 5 ½ months old and would love to be in contact with others with ACC especially mothers and fathers of children with ACC. Looking for parents who’s ACC’ers have health problems combined with ACC like lung issues, feeding issues (feeding tube) surgeries? My daughter has had tons of these issues and there is a lot I can share and a lot of questions too J Thanks e-mail me at asandoval@shaxon.com look forward to hearing from anyone J
Laura Sisson: "I'm Laura, My daughter Bethany was diagnosed with ACC at age 18 months. I would like to hear from any parent of a child with ACC that has gone thru the dreaded teenage years. we are there and it is all unfamiliar territory to me. My email address is llaroo87@sbcglobal.net." If anyone else wants to be added to this follow the directions given on the Support and Supporters page. Really excited about this page taking off! God Bless -Lynnea (if anyone wants to contact me for questions or support I've said before my e-mail is ACCawareness@gmail.com and I would love to hear from you!) |